How can I remain positive with PPMS?
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PPMS is a challenging condition but you can do a lot to improve your quality of life.
Transcript: When you have progressive MS the single most important step you can take to protect your quality of life...
When you have progressive MS the single most important step you can take to protect your quality of life and stay positive is to put together a team that provides medical, emotional, and physical support. You are not alone-and don't have to manage by yourself. There are organizations, physicians, nurses, friends, family, counselors and support groups that can help-AND help you feel more empowered. In addition, you will feel much more positive and maintain much more strength if you make sure to get daily exercise, eat a healthy diet, maintain a healthy weight, and reduce the stress in your life. Your team can help you achieve all that! So, here are the five steps that will help you build a team. 1. Contact the National MS Society. They provide telephone counseling from licensed therapists who can help you sort out your feelings about having MS and your confusion about how to tell people, manage everyday responsibilities and move forward. [ON SCREEN For a referral to a counselor, email: firstname.lastname@example.org The Society also provides MS Navigators to help you connect with others living with MS. [ON SCREEN] [For an MS Navigator call 800-344-4867] 2. Make sure your doctor has experience and interest in MS management and treatment. In addition to your primary care doctor, you need to establish an ongoing relationship with a neurologist you trust and who is knowledgeable about MS. This could be a very beneficial life-long relationship! 3. Get a referral to a physical therapist and consider seeing a nutritionist. They will help you establish an exercise routine that suits YOU and teach you about dietary changes that will give you more energy and improve your general health. 4. Get social. Find a support group you click with. [ON SCREEN For local support groups contact: Multiple Sclerosis Association of America at 800-532-7667 National MS Society at 800-FIGHT-MS] And connect with an online community. Sharing your feelings and experiences with others who have MS can be comforting and empowering. [ON SCREEN Make connections: www.MSconnection.org MSFriends helpline: 866-673-7436.] But beware of online sites that are filled with faulty info and folks selling so-called MS cures! If you want to know if some treatment is reliable check with your doctor and the MS Society.5. Find support for the whole family. MS is a family disease, and your loved ones will have many questions and challenges along the way too. Don't be shy about asking friends to lend a hand so your immediate caregivers can take some time for themselves. And contact your local MS chapter to find out what caregiver groups and support are available in your community.All these steps will reduce stress and make you feel more positive about your day-to-day life.More »
multiple sclerosis, MS, prorimary progresive, escalating MS, PPMS chronic disease, coping, syptoms, treatments