What support is available for someone with PPMS?
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Transcript: While there are no disease-modifying treatments for primary progressive MS, comprehensive symptom management,...
While there are no disease-modifying treatments for primary progressive MS, comprehensive symptom management, rehabilitation, and assistive technology can help you remain active and productive. There are many resources available to help you manage the challenges. Your first steps should be to find support with: Managing work and family. Handling your emotional challenges. And getting the care you need. [ON SCREEN Discover resources for: Managing work and family Handling your emotional challenges Getting the care you need Managing Work Legal employment protections, along with supportive organizations may help you stay employed as long as you want to and are able. But if you find that you cannot remain in your former job, there are organizations that will help you find work that is suited to your talents and abilities. They include: The Pearl Interactive Network; The Rat Race Rebellion, for home-based jobs; My Employment Options, for job opportunities for people receiving disability; Ability Jobs, for people with disabilities seeking employment in their chosen career and; Getting Hired, a networking site where people with disabilities can post their resume and make connections. [ONSCREEN 1. Pearl Interactive Network www.pearlinter.org 2. Rat Race Rebellion www.ratracerebellion.com 3. My Employment Options www.myemploymentoptions.com 4. JobAccess -ABILITY Jobs www.abilityjobs.com 5. GettingHired www.gettinghired.com] Next, let's look at Handling Your Emotional Challenges. To get help managing family responsibilities, you can make contact with other people with MS who are dealing with challenges of childcare, handling stress in their relationships, and taking care of the house. They'll help you cope and hopefully lighten the load. Start by contacting MSconnection.org online, or call the MSFriends helpline. [ON SCREEN www.MSconnection.org MSFriends helpline: 866-673-7436] Psychological counseling can help you develop effective stress management and problem- solving strategies. You can find a counselor in your area by contacting the National MS Society's Information Resource Center and connecting with one of the MS Navigators. [ON SCREEN For referral to a counselor in your area contact the National MS Society: firstname.lastname@example.org 1-800-344-4867 (1-800-FIGHT MS) Getting the Care You Need means building a team that includes a neurologist, your primary care doctor and perhaps a physical therapist and nutritionist. Because progressive MS is a highly individual disease, you and your doctor have to determine the risks and benefits for YOU from various treatments and make a plan to ease your symptoms that works for you. Although progressive MS can be a daunting challenge, there are many ways to improve your daily life. For more information on managing MS see the other videos in this series.More »
Last Modified: 2015-03-02 | Tags »
primary progressive multiple sclerosis, MS, PPMS neurological disease, treatment, symptoms, management